Steve Joffe
Research ethics, pediatric ethics, cancer ethics, genomethics, science policy, pediatric oncology @ UPenn. Opinions my own. R/Ts ≠ likes.
Last synced from Twitter 16m ago
DNA Testing Creates Wrenching Dilemmas for the Family Historian
WSJ 43h 3 tweets
With home testing now ubiquitous, keepers of the family tree are forced to juggle the privacy of close relatives with the needs of newly discovered kin; “I am sorry my doing genealogy has opened up Pandora’s box.”
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Steve Joffe More fascinating insights into the challenges wrought by consumer DNA testing and its implications for family secrets, from ⁦⁩. 43h
Daniel Callahan - A Remembrance
The Hastings Center 53h 1 tweets
There is a strange but charming tradition in the world of classical music of citing musical pedigrees. It’s not unlike the familiar parlor game Six Degrees of Kevin Bacon, but carried out with far greater seriousness. For instance, the renowned...
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Upenn.co1.qualtrics.com 34d 3 tweets
Steve Joffe Interested in learning more about postdoctoral opportunities in the biomedical sciences ? Consider joining us on September 25 for a preview. 60h
Protecting Pregnant Women With Opioid and Substance Use Disorders Participating in Research
Jamanetwork.com 3d 1 tweets
This Viewpoint discusses the potential risks faced by pregnant women with substance use disorders who participate in clinical research, including criminal prosecution for drug use while pregnant and custody loss of their children, and proposes...
Steve Joffe Thoughtful article on protections for pregnant women & babies in substance-use research. This para caught my 👁. When we include background risks in research consent forms, we risk confusing people & wrongly discouraging participation. 3d
FDA to Study Physicians’ Interpretations of Drug Information
Raps.org 3d 1 tweets
The US Food and Drug Administration (FDA) on Thursday said its Office of Prescription Drug Promotion (OPDP) will conduct a study to determine how factors such as information source, graphical presentations and time can influence physicians’...
How Do You Test a New Seasickness Drug? Take Pill, Set Sail
Bloomberg.com 4d 5 tweets
Most drug trials take place in sterile hospital labs, universities or clinics. Vanda Pharmaceuticals Inc. decided a boat in the Pacific Ocean would be better.
Faculty Position in History of Modern Life Sciences
History of Science and Technology 3d 1 tweets
The Department of the History of Science and Technology at The Johns Hopkins University invites applications for the position of tenure-track assistant professor in the history...
Not on My Watch
Jamanetwork.com 11d 12 tweets
This article describes the experiences of a first-year oncology fellow’s experience as he treats his first patient.
Steve Joffe A moving piece from in , unfortunately gated, on the experience of taking care of patients with advanced cancer as an oncology trainee. 3d
What I Learned Photographing Death
Nytimes.com 3d 9 tweets
Documenting the final moments between critically ill children and their families helped me come to terms with my cancer diagnosis.
Steve Joffe As this lovely piece shows, sometimes the most important thing you can do at the end is witness. 3d
Daniel Callahan: In Memoriam
The Hastings Center 4d 7 tweets
Daniel Callahan, a national voice for responsible health and science, who pioneered the field of bioethics, died Tuesday, two days before his 89th birthday. In 1969, Callahan cofounded The Hastings Center with Willard Gaylin. Callahan served as the...
Trump Rally Crowd Launches Into ‘Send Her Back’ Chant Over Ilhan Omar
Justin Baragona - The Daily Beast 4d 3 tweets
We now have a new gross Trump rally crowd chant to replace “Lock Her Up!”
A Border Kept Him From His Daughter. Now He’s Here to Say Goodbye.
Miriam Jordan - Nytimes.com 4d 8 tweets
A 13-year-old girl from Honduras waited for her father to join her in the United States. But her father was repeatedly detained at the border. He came too late.
Steve Joffe Words fail. 4d
It's time to change the definition of 'health'
STAT 5d 3 tweets
Developing a definition of health that works for more people across different segments of the life course will allow older adults the chance to be healthy.
Steve Joffe Such an important message, from postdoc Cara Kiernan Fallon & . 5d
Access to Trial Meds Needs Market Incentive, Conservatives Say
News.bloomberglaw.com 6d 1 tweets
Lawmakers and conservative advocates who fought to make it easier for Americans to use experimental medicines are floating a new twist: permitting drugmakers to sell unapproved drugs at a profit.
Medicare proposal would cover acupuncture for lower back pain
Andrew Joseph - STAT 6d 5 tweets
The Trump administration proposed a plan to cover acupuncture for Medicare patients with chronic low back pain, framing it as a step to avoid opioids.
Steve Joffe Medicare coverage of acupuncture for chronic low back pain under coverage with evidence development--good move, so long as the trials are high quality. 6d
The business of the body
The Economist 10d 3 tweets
The world is becoming a temple to wellness. Is this quackery?
Even When HIV Prevention Drug Is Covered, Other Costs Block Treatment
Kaiser Health News 7d 3 tweets
The U.S. Preventive Services Task Force recommended that people who are at high risk of contracting HIV take PrEP, a preventive treatment. The decision means most health plans will be required to c…
Library of Congress National Book Festival Announces Full Author Lineup
The Library of Congress 27d 3 tweets
The 2019 Library of Congress National Book Festival will offer an outstanding lineup of authors for readers of all ages for the festival’s 19th year, with more than 140 nationally recognized authors, poets and illustrators, as well as the addition...
Are sham acupuncture interventions more effective than (other) placebos? A re-analysis of data from the Cochrane review on placebo effects. - PubMed - NCBI
Ncbi.nlm.nih.gov 9d 1 tweets
PubMed comprises more than 29 million citations for biomedical literature from MEDLINE, life science journals, and online books. Citations may include links to full-text content from PubMed Central and publisher web sites.
Steve Joffe 2/ Presumes that the placebo effect is greater w/ more invasive than w/ less invasive interventions. There is some (inconsistent) lit to support this ( ) 9d
Effectiveness and Implications of Alternative Placebo Treatments: A Systematic Review and Network Meta-analysis of Osteoarthritis Trials. - PubMed - NCBI
Ncbi.nlm.nih.gov 9d 1 tweets
PubMed comprises more than 29 million citations for biomedical literature from MEDLINE, life science journals, and online books. Citations may include links to full-text content from PubMed Central and publisher web sites.
Steve Joffe 2/ Presumes that the placebo effect is greater w/ more invasive than w/ less invasive interventions. There is some (inconsistent) lit to support this ( ) 9d