'Like we were being forced to gamble with our son's life': Health insurers won't pay for a $2.1 million drug for kids, and parents say they're running out of time
Insurers denying world's most expensive drug, $2.1 mm gene therapy for spinal muscular atrophy, to patients outside (a) labelled indication and (b) what the trial demonstrated. hearbreaking stories. gimlet eye: wonder if Novartis has a hand in em
If you needed a clearer example of what I mean about castigating insurers that negotiate drug prices, here you go. This is what price negotiation looks like -- it isn't writing an ICER report, its walking away when you believe the price is too high.