The expanding use of personal genomic data in cancer care has raised questions related to privacy and #datasharing. These issues were discussed recently: #genomics
Who owns a patient's #genomic data? This was one of many questions that patients, cancer researchers, and patient advocates explored recently: #datasharing
Who owns a patient's #genomic data? This was one of many questions that patients, cancer researchers, and patient advocates explored recently: #datasharing
Thanks to for convening patients to discuss such important Qs. Who should get genetic tests? What information do cancer patients need to understand their results? Should these results be shared? Patients Discuss Use of Genomic Data in Cancer Care
“Throughout the entire process, we work hand in hand with the patients who have the diseases we are trying to help,” said Dr. Painter.. “We have been learning as much from them as they have learned from us.” Read more on pts sharing their genomic data
Writeup about the fall symposium: "Patients Discuss Use of Genomic Data in Cancer Care" #cancer #genomics #nci #nih
As Use of Genomic Data Expands in Cancer Care, Patients Share Their Stories
Patients Discuss Use of Genomic Data in Cancer Care Patients want to be able to make decisions about their personal genomic data for themselves
Patients Discuss Use of Genomic Data in Cancer Care