Thread by @StoverLab: "This is treatment for : 1) Patient with new metastatic disease. Evidence-based treatment recommended. 2) All documentad and submitted with with published evidence as part of Prior authorization. Aggregate provider time: 35...
Susan RahnThere are thousands of tweets by patients w horror stories dealing w insurance cos Having treatment, procedures & referrals denied & appealed multiple times; often going nowhere
Ever wonder how the doctors feel?
Thread by @StoverLab
Susan Rahn📣Anonymous Survey for ALL #MetastaticBC patients.
The goals of this study are to gain a deeper understanding of how adults w MBC reconstruct their identities, relationship changes & challenges they experience after a MBC diagnosis. #bcsm
The True Cancer Bodies campaign was set up after what campaigners said were "misleading" adverts.
Susan RahnDear @SusanGKomen
It's not pretty
It's not pink
It's not ribbons
It's not merchandise
It's not races
It's not a slogan
It's financially devestating
It's life changing
Implying cancer is a battle to be won has unspoken, painful implications. Here's what you should say instead.
Susan RahnI have never and will never be a fan of nor be accepting of battle language and cancer. My strong opinions have brought forth even stronger criticizism - usually by those never having lived...
Susan RahnWe need more #ClinicalTrials like this for #MetastaticBC patients that test drugs like #Neratinib initially for early stage patients that can also potentially improve OS when used in combination therapy treatment
The pharma giant said 41 drugs would see a price increase, representing 10 percent of its product portfolio. Most will go up 5 percent.
Susan RahnI've run out of financial help & have to go back to @pfizer for assistance & this little gem comes out. Now I'm sick to my stomach & it's not from side effects. #Ibrance is already $11.7k/month. Do I hope for a bad scan Tues so it's a non issue? #bcsm
Avoiding evidence-based treatments in favor of untested ones can contribute to higher death rates, a Yale study found.
Susan Rahn"Among women with (potentially curable) breast cancer (that had not yet spread beyond their site of origin), choosing alternative remedies resulted in a nearly sixfold increase in the chance of dying during an average follow-up period of five and a...
It’s not all about pink ribbons and cures. Women living with metastatic cancer have their own kind of hope.
Susan RahnDon't be fooled by the fluffy beginning of this @O_Magazine article about #MetastaticBC, if you keep reading, @aprlgrove will tell it like it is because she's living it every day. #ThisIsMBC #Stage4NeedsMore
Advanced cancer patients need coordinated care. Palliative Care is a service that needs to be discussed and offered at the beginning of diagnosis to ensure good quality of life.
Susan RahnAll #cancer patients and especially those with #metastatic disease benefit from #PalliativeCare to help mitigate side effects, pain and help overall quality of life. Are you receiving Palliative Care? Why not?
#bcsm #amsm #PalliativeCare4all